About Us

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths, including Sudden Unexpected Death in Epilepsy (SUDEP). The only UK charity supporting and working alongside those whose loved ones have died suddenly from an epilepsy related death.

Our support service is tailored, and led by what the bereaved need and want - which can include someone to talk to, advocacy, information, advice and involvement.

Contact Us

Contact our support team on 01235 772852 or email support@sudep.org

Contact info@sudep.org for more information.


To learn more about our Epilepsy Deaths Register visit www.epilepsydeathsregister.org

About SUDEP Action

Creating a Memorial

Our memorial page has been specially designed to offer you somewhere to celebrate the life of someone you have lost to epilepsy and a place to remember them. This means you can leave a lasting tribute to someone, which family and friends can contribute to.

Simple to set up, you can upload photos, poems, videos, music and memories. Anyone can set one up and everyone can contribute their thoughts and memories as well as light a candle of remembrance.

If you do choose to raise funds in memory of someone special, you can be confident that all the money will go directly to helping our vital work. SUDEP Action provide free safety tools, information and resources to clinicians and people with epilepsy, as well as working in collaboration with UK and international research teams to help prevent epilepsy deaths - striving to get the answers that will save lives.

Becky Scrivens

For me, setting up an online memorial provides a public place where feelings and memories can be recorded. I know that other family members, our friends and Becky’s friends will really value that. I have always wanted something positive to come out of Becky’s death. Raising funds in Becky’s memory, to support the efforts of such a wonderful charity, has  felt like the right thing to do. In this way, I can support the charity’s work in preventing other fathers suffering a similar loss.”

Roger Scrivens