SUDEP Actionreducing risk
SUDEP Action provides a contact line enabling people who have been bereaved by epilepsy related deaths to get initial support and information. Currently there are over 1,000 calls per annum.
EB provides support to people individually and the opportunity to meet each other in regional peer support groups. Last year EB hosted two national and six regional meetings.
EB lobbies clinicians, heath managers and policy makers with the aim of raising awareness and ultimately reducing the risk of epilepsy related death. For example, last year EB influenced over 230 + health care professionals, clinicians & policy makers.
EB carries out and supports research into the causes of SUDEP and other epilepsy deaths. We are currently working in partnership with Kings College Hospital London with the aim of finding ways to prevent SUDEP and other epilepsy deaths.
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