Are you struggling with a recent bereavement? Please call our support line on 01235 772852 or E-mail us

SUDEP Action

reducing risk

SUDEP Action provides a contact line enabling people who have been bereaved by epilepsy related deaths to get initial support and information. Currently there are over 1,000 calls per annum.

EB provides support to people individually and the opportunity to meet each other in regional peer support groups. Last year EB hosted two national and six regional meetings.

EB lobbies clinicians, heath managers and policy makers with the aim of raising awareness and ultimately reducing the risk of epilepsy related death. For example, last year EB influenced over 230 + health care professionals, clinicians & policy makers.

EB carries out and supports research into the causes of SUDEP and other epilepsy deaths. We are currently working in partnership with Kings College Hospital London with the aim of finding ways to prevent SUDEP and other epilepsy deaths.

Visit SUDEP Action:

Becky Scrivens

Becky Scrivens

For me, setting up an online memorial provides a public place where feelings and memories can be recorded. I know that other family members, our friends and Becky’s friends will really value that. I have always wanted something positive to come out of Becky’s death. Raising funds in Becky’s memory, to support the efforts of such a wonderful charity, has  felt like the right thing to do. In this way, I can support the charity’s work in preventing other fathers suffering a similar loss.”

Roger Scrivens